Department of Neurosurgery

Surgery Offers Hope to Las Vegas Teen With Elhers-Danlos

“A huge break-through came in September 2019. Kendall’s mom found Dr. Petra Klinge, a Rhode Island neurosurgeon specializing in Ehlers-Danlos. Dr. Klinge confirmed Kendall also suffered from tethered cord syndrome, a serious complication some EDS patients develop.

‘I took him to Dr. Klinge. And within ten minutes we had a diagnosis that took us eleven and a half years to get to,’ says Trudy. ‘Just like that, you get the children to the right doctors and we get results.’

Last January, Kendall and his mom traveled back to Rhode Island for a delicate surgery to open his spinal column and release the spinal cord so it could move freely.

‘And three hours later, he came out of surgery,’ says Trudy, ‘And we had the discussion with Dr. Klinge about the release and how some of the filaments had wrapped themselves around some nerves in his legs. And we hoped for the best.’

Six months later, Kendall’s mom captured a miracle on-camera… video of her son not walking… but running on a beach. A bright spot on a long road to recovery marred by many tough days…”

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Petra M. Klinge, MD, PhD

Professor of Neurosurgery
Director, Pediatric Neurosurgery Division
Director, Center for Surgical Treatment of the Developing Brain and Spine